About This Session
Health care organizations across the country are actively seeking effective ways to collect meaningful feedback from patients and families about outcomes and experiences related to patient safety, diagnostic quality, and health equity. National efforts—including the CMS Structural Measure, Leapfrog Hospital Surveys, and CDC guidelines—have called on health systems to establish mechanisms for gathering such input to drive improvement. To date, however, there has been limited systematic use of patient-reported measures (PRMs) that capture patient and family experiences and outcomes that matter most to them in these critical areas.
Project PIVOT has addressed this gap by engaging diverse patients, family members, advocacy groups, HHS agencies, health care system professionals, vendors, PSOs, and others to answer the question, "What are new potential survey questions that could be integrated into national, organizational and research measurement tools (i.e. HCAHPS, PREMs and PROMs) that would help improve patient safety, diagnostic accuracy and timeliness and discrimination/bias in health care?"
Learning Objectives
By the end of the webinar, participants will be able to:
-
Understand the unique methodology used by the Project PIVOT team to prioritize de novo survey questions that capture what matters most to patients who wish to report outcomes and experiences of patient safety events, diagnostic inaccuracy or delay, or bias, as well as to capture what would be most useful for providers and researchers to hear from patients.
-
Describe the Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMS) that Project PIVOT developed for potential integration into national and organizational patient surveys to capture the concerns and outcomes that matter most to the general population, as well as three priority populations: 1) Persons with Disabilities, 2) Mothers of Color, and 3) Older Adults.
-
Explain how the community engaged to develop Project PIVOT and use its output in action to test and validate prioritized survey questions, systemically embed them in patient surveys, and use them in future improvement work and research.
Speakers
Martin J. Hatlie, JD
Director for Policy & Advocacy, Patients for Patient Safety US
Martin J. Hatlie, JD, is Director of Advocacy and Policy for Patients for Patient Safety US (PFPS US), which he co-founded in 2021. He is passionate about advancing the roles patients and family caregivers play as patient safety advocates and co-creators of solutions. Hatlie has been active for over 25 years in health system transformation work on research projects and transformation campaigns funded by the Centers for Medicare and Medicaid Services, Agency for Healthcare Research & Quality, and Patient Centered Outcomes Research Institute, among others. He served on the Technical Expert Panel that produced the CMS Patient Safety Structural Measure in 2023. He was Co-PI on the AHRQ project that drafted the Guide to Improving Patient Safety in Primary Care Settings by Engaging Patients and Families (2018) and a consultant in the development of the AHRQ CANDOR (Communication and Optimal Resolution) Toolkit (2016). He is currently on the PFPS US leadership team, developing Project PIVOT (Patients Involved in developing Outcomes Together), a PCORI-funded initiative focused on prioritizing what patients want to report on experiences of patient safety events, missed or delayed diagnoses, and bias.
Sue Sheridan, MIM, MBA, DHL
President & CEO, Patients for Patient Safety US
Susan E. Sheridan, MIM, MBA, DHL, is President and CEO of Patients for Patient Safety US (PFPS US). Prior to her role at PFPS US, Sheridan served as the Director of Patient Engagement for the Society to Improve Diagnosis in Medicine (SIDM), the Patient and Family Engagement Advisor at the Centers of Medicare and Medicaid Services (CMS), the Director of Patient Engagement for the Patient Centered Outcomes Research Institute (PCORI) and led the Patients for Patient Safety program at the World Health Organization (WHO). She recently served on the Patient Safety Working Group of the President’s Council of Advisors on Science and Technology (PCAST) and is currently the co-chair of the National Academy of Medicine’s (NAM) Patient Safety in the Era of AI initiative.
Sheridan had previously spent 10 years in patient advocacy, inspired by adverse family experiences with the healthcare system. In 2009, Sheridan was named to Modern Healthcare’s list of Top 25 Women in Healthcare as well as Modern Healthcare’s 100 Most Powerful People in Healthcare. Prior to her leadership in patient engagement, she worked as Vice President of International Trade Finance Banking. Sue received her BA from Albion College, her MIM and MBA from the Thunderbird School of Global Management, and her DHL from Adrian College. Additionally, Sue and her late husband, Pat, served as Peace Corps volunteers in Ecuador.
